Calls for Reform in Healthcare System to Address Support
Gaps
CANBERRA — Thousands of Australians under the age of 65 suffering from life-limiting illnesses are missing out on crucial support to receive end-of-life care at home, according to Palliative Care Australia (PCA). The organisation, alongside Parliamentary Friends of Palliative Care, is urging government action to bridge the gaps in current healthcare systems that leave many without necessary care options.
Each year, between 5,000 and 10,000 individuals fall through the cracks of the National Disability Insurance Scheme (NDIS), aged care, and health systems, PCA reports. This lack of coordination forces many into hospitals or residential care facilities, despite a preference for receiving care at home. “The system is failing many Australians who deserve to spend their final days in the comfort of their own homes,” said Dr Peter Allcroft, Chair of PCA.
A national coalition of advocates, clinicians, and individuals with lived experience will convene at Parliament House to shed light on these issues and demand immediate reform. The gathering will feature speakers such as Fiona Hassmann of the Peace of Mind Foundation and Clare Sullivan, CEO of MND Australia, who will provide insights into the systemic challenges and propose solutions.
National Coalition Advocates for Change
The push for reform comes amid growing criticism of Australia’s fragmented healthcare support system for those under 65. Olivia Nassaris, CEO of Parkinson’s Australia, highlighted the urgent need for a unified approach that ensures consistent, accessible care. “We need a system that supports people at every stage of their illness,” Nassaris stated.
The event will include opportunities for media engagement, where sector leaders and individuals affected by these challenges will share their experiences. This initiative reflects a broader trend in healthcare advocacy aiming for more integrated and personalized care solutions. Anthony Herbert from Children’s Health Queensland emphasised the importance of addressing these gaps to improve quality of life for patients and their families.
In addition to these challenges, there is a pressing need for increased funding and resources to adequately support young Australians with life-limiting illnesses. Many families face a significant financial burden when attempting to care for their loved ones at home, exacerbated by the lack of tailored services and support. This situation often leads to emotional and physical strain on both patients and caregivers, highlighting the urgent need for comprehensive policy changes.
Experts suggest that a collaborative approach involving government agencies, healthcare providers, and community organisations is essential to develop effective strategies that address these issues. By establishing a cohesive framework for care, stakeholders can ensure that young Australians with life-limiting illnesses receive the support they need in a timely and compassionate manner.
The current system’s inefficiencies have been a topic of concern for many healthcare professionals. These inefficiencies often result in delayed treatments and a lack of access to essential services. By addressing these issues, there is potential not only to improve individual patient outcomes but also to enhance the overall efficiency of the healthcare system. The reform movement is gaining traction, and with continued advocacy and support, there is hope for meaningful change that will benefit countless Australians facing life-limiting illnesses.
Last updated: 4 April 2026, 8:23 pm
