Survey data shows problems with cost, quality and local availability
Dementia Australia and Carers Australia called on 3 September 2026 for Federal Government leadership and investment in an independent national review of respite care services.
The two organisations released a joint position statement that highlights problems with the availability, quality, appropriateness and affordability of Commonwealth-funded respite services, especially for people living with dementia and their carers.
Findings from the 2025 Carer Wellbeing Survey underpin the call. Six in 10 carers reported difficulty finding high-quality respite. Nearly 60% had trouble finding services in their local area. More than half struggled to afford respite and faced long wait times.
Dementia Australia chief executive Professor Tanya Buchanan said an estimated 446,500 Australians are living with dementia, and many are cared for at home by unpaid carers.
“Respite is not a luxury. It is a critical support that helps carers manage the physical and emotional impacts of caring, and especially for younger carers, the financial impact,” Professor Buchanan said.
Survey shows carers face long waits
Professor Buchanan warned that when respite is unavailable, inaccessible or unsuitable, carers are more likely to burn out and reach crisis points.
As a result, the risk rises for unplanned hospitalisation or premature entry into residential aged care for the person receiving care. She said that adds pressure to individuals, families, and the health and aged care systems.
Professor Buchanan also said the last dedicated national review of Commonwealth respite services was nearly 30 years ago. “We need to do something about this urgently,” she said.
Carers Australia chief executive Joanna Cave described respite as a circuit breaker for unpaid carers and an essential service. She said an independent review would provide evidence to improve respite policy and programs and better support carers and the people they care for.
The organisations said respite benefits carers, the person receiving care and the extended family. Their position focuses in particular on people living with dementia, who may be able to remain at home and in their communities for longer when carers can access suitable support.
Dementia Australia advocate Jennifer Quilligan, who cares for her husband Saab, who is living with dementia, said quality respite was essential to helping people with dementia and their carers continue living well at home.
